At least for now, I’m enjoying being at home with my family and in my own bed. Mostly what I’m doing is lounging around due to a complete lack of energy. Ten days in a ten foot by ten foot room will sap all of your strength. The effects of chemo are behind me and I am just waiting for the donor’s marrow to fully kick in. My blood cell counts are going up slowly but as the doctor says the donor’s white cells are “stupid.” It will take a while for them to figure out how to fight off infection in my body. Next week I will be getting another bone marrow biopsy to make sure that the marrow is all from the donor and none of mine is left.
I’m having problems eating because nothing tastes very good and it is also hard for me to keep all of my pills down. I have to take about twenty a day. Hopefully my appetite will return soon and I will be throwing back pills like a pro. The doctor has said that I will have days where I feel back to normal and days where I have no energy. These will be interspersed with no rhyme or reason. Until day 60 , I’m still not allowed to go into crowds, be outside without a mask, and must stay on my dietary restrictions. After day 60, I am looking forward to fresh fruits and vegetables. Yay for salads! What is a hamburger without lettuce, tomato, and onion?
Brad already explained the new and strange technique of blood letting that they’re using at St. Francis. After the initial shock of seeing my blood everywhere, I recovered and looked at it as another strange story in this crazy adventure. The best part about all of this has been all the friends I’ve gotten to see and the encouragement and prayers that have helped lift our family through this time.
Love,
Laura
Day +22 (over a 1/3 of the way)
Yippee! So fun to see a post from you. Just imagine, in the upcoming days when you feel more energetic you’ll get to start cooking some of your amazing food for yourself! As you well know, I am still praying for you every day and will continue to for a long time. I’m so proud of your whole family. See you soon.
Jen
Yeah!! So nice to hear from you Laura!! We’ll keep praying for those donor white blood cell’s “education”…that they will get smarter and smarter and stronger and stronger and grow and multiply!! We love you and your family and are praying for all of you as you run this major endurance race. Just think: one day in the future you won’t have nausea anymore. Doesn’t that sound wonderful?! Lord, bring on the healing! Amen and Amen!!
Love,
Mary Anne
Hi Aunt Laura,
I’m so glad you are out of the hospital! I look forward to seeing you again at school. I hope you feel better soon.
Love, Katie
I sure missed you at the 8th grade graduation breakfast this morning, Laura. It just isn’t complete without you.
Love you,
Renata
hello laura! Chase and I are glad to hear your home. You’ve been in our thoughts and prayers so much. Ellen finally gave us your blog website, or we would have been in touch sooner. Please let us know if we can help in any way. In our thoughts and prayers, HIEDI & CHASE