On Wednesday I had my monthly checkup at the bone marrow clinic. It is weird to say that it is enjoyable. Brad, the boys and I always go together. We have fun seeing the nurses and doctors that took such good care of us since last March. I spent more time with my nurses than anybody else last year. They have been some of the most wonderful and encouraging people through our journey.
In December the news had been good but cautious. The numbers that measure my liver function were up, and the doctor wanted to watch things carefully to see if they should do a biopsy to confirm graft versus host disease (GVHD). I was worried that this would mean lots of other tests and more medications with unwanted side effects. I also wasn’t thrilled about the idea of a liver biopsy. I have heard that these are done by going in through the jugular.
Well, my numbers have not changed. They are still a little high, but my doctor said that they don’t usually treat it unless the numbers are 5 – 10 times over normal and mine are not yet double. (70 when they should be 40) He said not to worry about it for now. YEAH!
This happened to be my 9 month appointment. I had stopped counting – which is a good sign! They did extra blood tests to make sure there is no sign of leukemia & to check to see if my blood is all donor. No leukemia! All donor cells! More good news.
The only bad news is that the new year brings a new set of insurance deductibles. Even though we will have to scrape and save for this, we are very happy to have insurance at all. The actual cost for keeping me alive last year is at about half a million dollars so far.
Laura